Aaack! I just talked to our insurance co on the phone because they have stopped covering Buggy's feeding supplies. I was informed that this plan does not cover disposable items of any kind. WHAT!?!?! Do you mean that I pay premiums for you to not help in my daughter's day-to-day living? You aren't going to cover something that is *essential* to her life? Her food bags aren't important because they are disposable? The lady on the phone tried to console me by saying that they didn't cover colostomy bags either...
Are you kidding me!?!?!?
They refuse to assign her a case manager, because they "don't do that for anyone" and then I get to clean up the messes of things not getting billed right, or being flagged because they "could have been caused" by an injury caused by someone else. (aka, someone else gets to pay for this)
On top of that, our car broke this weekend. I knew it was coming, but I didn't have the energy to deal with it just yet. It turns out that the radiator is done. It needed to be replaced. We hoped that would solve the problem of the heater blowing out cold air, but apparently not. We will have spent more than $1000 on the car by the end of this week...just when we were getting our food storage bulked up.
I'll probably erase this post because it's not very nice or happy or well though out or helpful or even productive. I just needed to gripe and the people I would normally call are gone.
Things would be much easier for me if I were an extrovert. :-P
Thursday, October 9, 2008
As most of you know, Buggy's life day was on the 2nd of this month. It has been 3 years since my beautiful babe had a grade 5 brain bleed which caused her heart to stop and her lungs to fill with fluid. Our life has been a rollercoaster since then. She has been a joy and a master teacher to me. She is now talking up a storm and putting four or five words together. Here is pic taken just a few days ago with her "jiggle vest" on. This wonderful invention has kept her out of the hospital for almost one year...yes, you read that right. No admissions since November of *last* year. I doubted that day would ever come when we could live our lives and not worry about constant hospital stays. We're not out of the woods completely yet, but things are definitely looking up on the short-term health front.
Little has a "little" cold. She snorted around in a pool of snot last night and this morning it is much worse. She doesn't seem to be cranky, though, so it's all good. Other than sleeping a little more than usual, she seems to be okay.
Today starts our first round of Parent teacher conference. We'll be seeing the teacher at Public School preschool. The big kids have conf next week.
As you can guess, with all of the girls around our house, we do "princess" a lot. Rapunzel is catching on to her letters and J caught this pic while she had made her own crown and sceptor.