Wednesday, February 25, 2009

Hip, Hip, Hooray, for the Piglet and the Pooh!

She did it! She pooped in her potty all by herself. (You didn't really want a photo of that, did you?) ;-)

Monday, January 12, 2009

Christmas Carnage

That's what it's called, right? We try to simplify, we try to focus on the right things, the right people and not the stuff.

Here's our carnage:

pre-carnage



I tried to post the pics of the carnage and blogger's being silly. Maybe I'll try again later. I was able to get our required sock photo. We don't do pajamas or an outfit for every year-we were too poor for too long. But we do socks. Every year we get socks and we take a matching photo. Here is this year's:


We've been trying to figure our Buggy's "snot" problem. The current dr'sd were all of a mind that it was just part and parcel of the stroke and the only thing we can do about it is to not feed her. Well, nothing improved when we stopped feeding her, so we went back to food and saught a second opinion. We may be switching peds and my heart is hurt. We love our ped and he has been through so much with us. It's getting to a place now where we need a more assertive and respected advocate when it comes to continuity of care, so we have found someone new in the valley. Our previous ped just was too new of a doc to hold much clout with the "specialists" at Primary's. The new ped has bunches of new suggestions and they are actually working.

The ENT in the valley has decided to open an allergy clinic here in town. I know he's new and not very experienced, but he may be more open to new methods of testing, right? I have a great blood test that I want Buggy to have that has much fewer false negatives than the RAST. We did a RAST in Decemeber and as it turns out, Buggy is allergic to corn and soy (among other things). WE cut them out and didn't see any difference for almost three weeks, then she got sick...

For the last 8 or so days, Buggy has had absolutely no green goo when she wakes up. It's been so exciting. !!!!!


We also cut all dairy for the same time period. We have to replace her tubes and plan to do some other tests while she's out for the surgery, and we'll be having a "collaborative" meeting with some of her docs in about a month or two. It looks like we might actually be getting closer to getting her healthy.

Little is cruising all over the place. she is a pro at crawling. She is so young and doesn't understand object permanence, though, so she crawls behind me until I leave the room and then she starts to cry as I've disappeared. She also can't climb, so she tries to crawl over me and can't get all the way over. It's been so funny to watch. I've never had a baby do this much this early. Enjoy your January

Tuesday, December 23, 2008

Here is the tag that all have been doing, and I'll play along...

From November 2003


Where did you meet?

We met in High school at Kearns High in SLC. I knew of his sister in eighth grade. We were in the same "group" in school although on different peripheries of it. I knew she had an older brother, but he didn't come onto my radar until I was a sophomore and he was playing Conrad Birdie in the School Musical. I think he didn't know who I was until the end of that year when I didn't have anybody to hang out with at Choir tour, so I hung around with his friends (who were also friends of mine in debate).

What was the first thought that went through your head when you met?

"Oh my goodness. He is just the most exotic-looking gorgeous boy I have ever seen" I always swooned when I was around him. :-) When he asked me on our first date it was even worse.

Do you remember what he was wearing?

I don't remember if he was wearing his costume for the role of Conrad or not, but I seem to remember that he was. He was "rehearsing" before the show in front of the Concert Choir anbd he sang that song that has the words "some girls are ripe for some kissing..." he was swinging his hips like Elvis and and all the girls were screaming at him. I knew at that moment that although he was amazing, I would never be in his league. He had dates all the time and was always hanging around cute girls. Imagine my total amazement when we became friends and then when we started dating.

Where did you go for your first date?

He asked me out first to a SPEBSQSA concert in preparation for his newly-forming quartet. But it was about two weeks away. I ended up asking him out second, but our date was first. It was a concert at Abravanel of a new-age musician that I really enjoyed at the time (okay, okay, I admit it, I like new-age!) Hehe, my parents also had tickets. So our first date was adouble with my parents. How's that for dorky beginnings? ;-)

Where was the first time you kissed this person?


I think I've answered this in a previous tag...on his front doorstep with his little brother egging us on behind the door. The kiss after the mission was way better. :-)


When was the first time you realized that you liked this person?

As soon as I knew him. Once we got to know each other, I realized that he was amazing in other things besides his looks. I always hoped that someday we would really end up together but I realized the unlikelihood of that happening to people from high school. Even after we started dating, I was so afraid that we would screw it up and I would never see him again. He and I are both introverts, so the early days of our dating were rather awkward for both of us. I didn't really have a solid relationship with him in till the mission. We became best friends through those weekly letters.

How long did you know this person before you became a couple?

About a year from the time we were both aware of each other to when we were a "couple". Considering that I was only 15 when we met, that's a good thing. :-)


How did this person propose to you?

I had agreed to go back to Jackson before we were exclusively dating after the mish and I asked him if he wanted me to go or should I pull out of it. He said to go. It would only be one summer, right? In fact, I was only going to stay for a month until the Hatchet sold to the new owner. He said it would be a great time to write mushy letters to each other. Well, I think I got two or three letters. I used a *lot* of phone cards that summer. One week our talking got really forced and awkward as we tried to make plans for the next year without actually saying "marriage". Finally, he said "I've been beating around a bush a lot and I hope you know which bush I'm beating around." that kind of let off the tension and he said that he wanted us to start talking about getting married. I hated the idea of a long engagement, so I said, "when?" He came up about two weeks later, after having asked my parents for permission, and gave me my ring. No knee, no proposal, nothing. To hear him tell the story, I proposed to him. I think it was him that did the actual asking, just not in so many words. We've improved our communication since then. ;-)

Do you and this person have kids together?

We had a baby boy, Evan, in March of 1999. He was stillborn. We also have 4 other children. One boy and 3 girls. They are all beautiful.



Have you ever broken the law with this person?

I'm sure we have, I just can't remember it now. I mean we've been together for an awful long time. I'm sure it would mostly just be traffic stuff... ;-)

Do you trust this person?

I do. Trust is a big deal and occasionally goes in and out. But I trust him with my heart and with my family.


Do you see him as your partner in your future?

Of course, and partner is a good word as I don't see him as just my spouse, but my partner in everything.

What is the best gift he gave you?

While we were dating, he had gone with me to my Grandparents home. My grandma is short and she has footstools all over the place. I made some offhand comment that I would also have footstools everywhere and for my birthday he made me a footstool. He made the stool from wood that he cut out and then he did a needlework design that was in my favorite colors with a saying that was dear to my heart and subsequently inscribed in my wedding band. It was for my 17th birthday. I still have it, it's been put away as I have littles who get things dirty and until I master cleaning needlepoint, I don't want to leave it a target for too much destruction. He is great with things like that. Gifts that are well thought out and tender.

What is one thing he does that gets on your nerves?

I would get really upset when we were first married th t he would leave the cupboard doors open. I kept trying to change his behavior. That was when I learned. I married a person. I don't want to change him and he didn't marry me to be changed. I close the cupboard doors now. :-)


Where do you see each other 15 years from now?

We hope to be in a hobby farm by then with no debts and on our way to being off the grid. :-)

What causes the most arguments?

Nan said the same thing that happens in our home. I cause arguments. He doesn't argue. If I lose my cool, he maintains a calm demeanor throughout the conversation. We're learning ways to have deep conversations about things that matter to us rather than harboring grudges about things that don't meet either of our needs.

How long have you been together?

We started dating in April 1995 and were married in Sep 1998. So that's 13 years together and we just celebrated our ten year wedding anniversary.

Who Do you Tag?

Ooh, Sapps, Cousin Andrea, and whoever else hasn't done this yet...

Halloween...

Yeah, sorry it took so long. I always procrastinate uploading my photos as my hard drive was getting so full that it was keeping the thing from working properly. Here are my cuties...




Frodo was Hamlet. Yes, you read that right. He was Hamlet. He designed the costume all by himself. I was laughing at his choice of characters and I quizzed him on the story. My son knows not only the main plot, but also *all* of the subplots and how everyone dies. Who knew what guiding children in the direction they show interest would do... ;-)




Rapunzel was a princess, of course. When we asked her if she was Ophelia to Frodo's Hamlet, she said, "of course not mom. Ophelia dies in a pool in the river. I had no idea she knew about the story, so I quizzed her, and without any prompting from her brother, she was also well-versed in the story. She's five.



Buggy was...a bug. It was the costume we owned that fit her. ;-) And boy, was it cute. She had practiced so hard at saying "trick or treat" and every time she did, she erupted into gasps of laughter. As we were taking photos, I told her to say cheese and you can see her here, signing "cheese". This is the photo I'm turning in to "Signing Time" as they are a major contributor in Buggy having the language acquisition that she does.


That last one is sweet little baby and Daddy in his be-all costume. This cloak has been many things for many people. Ghost of Christmas Future, Dementor, Obi Wan, generic scary guy.

The kids were going to do some looting to a few older neighbors and then meet me at the ward party, but they ended up having too much fun to be bothered with meeting me and I ended up alone at the party with my babe. :-) Oh well, at least they had fun and I still got the "tax" of candy. :-)

Tuesday, October 14, 2008

Can You Fix This...Please!

Aaack! I just talked to our insurance co on the phone because they have stopped covering Buggy's feeding supplies. I was informed that this plan does not cover disposable items of any kind. WHAT!?!?! Do you mean that I pay premiums for you to not help in my daughter's day-to-day living? You aren't going to cover something that is *essential* to her life? Her food bags aren't important because they are disposable? The lady on the phone tried to console me by saying that they didn't cover colostomy bags either...

Are you kidding me!?!?!?

They refuse to assign her a case manager, because they "don't do that for anyone" and then I get to clean up the messes of things not getting billed right, or being flagged because they "could have been caused" by an injury caused by someone else. (aka, someone else gets to pay for this)

On top of that, our car broke this weekend. I knew it was coming, but I didn't have the energy to deal with it just yet. It turns out that the radiator is done. It needed to be replaced. We hoped that would solve the problem of the heater blowing out cold air, but apparently not. We will have spent more than $1000 on the car by the end of this week...just when we were getting our food storage bulked up.

I'll probably erase this post because it's not very nice or happy or well though out or helpful or even productive. I just needed to gripe and the people I would normally call are gone.

Things would be much easier for me if I were an extrovert. :-P

Thursday, October 9, 2008

Happy Life Day



As most of you know, Buggy's life day was on the 2nd of this month. It has been 3 years since my beautiful babe had a grade 5 brain bleed which caused her heart to stop and her lungs to fill with fluid. Our life has been a rollercoaster since then. She has been a joy and a master teacher to me. She is now talking up a storm and putting four or five words together. Here is pic taken just a few days ago with her "jiggle vest" on. This wonderful invention has kept her out of the hospital for almost one year...yes, you read that right. No admissions since November of *last* year. I doubted that day would ever come when we could live our lives and not worry about constant hospital stays. We're not out of the woods completely yet, but things are definitely looking up on the short-term health front.

Little has a "little" cold. She snorted around in a pool of snot last night and this morning it is much worse. She doesn't seem to be cranky, though, so it's all good. Other than sleeping a little more than usual, she seems to be okay.

Today starts our first round of Parent teacher conference. We'll be seeing the teacher at Public School preschool. The big kids have conf next week.

As you can guess, with all of the girls around our house, we do "princess" a lot. Rapunzel is catching on to her letters and J caught this pic while she had made her own crown and sceptor.

Sunday, September 28, 2008

oops...

Sorry all. I was looking on a friends blog that had a blogroll and when the last post of the blog occurred and I realized (with proper shame, of course) that it's been over 4 months since my last post.

We had a family council and decided to have the kids go to public school for now. I was worried that they would start complaining after the first week and it's been 4 now and we're still going strong. Frodo loves his 3rd grade class and Rapunzel adores her kindergarten teacher. She's struggling with her letters, they still evade her much of the time, but she'll get it when she's ready. We have a literary home and I don't doubt that she'll read when she's ready, the trick is to keep her teachers from getting concerned and keep her from falling behind her peers too much (or keep from caring). I'm sure it will be fine, she has already picked up tons from where she started.

Frodo has started reading Animorphs. It's been so funny to watch him get so wrapped up in this fiction series *without any pictures*. We had the joy of discovering AR in the last few weeks and he seems to be right on track with that.

We sat down to dinner last week and he said "mom, it's nice when we're together." I asked him to clarify and he continued, "I mean, all of here, right now, being with each other...it's nice. Don't you think it's nice to be with us?" Both J and I assured him that we did like it. Before public school, we spent all day every day together. The kids had a hard time with sitting down to dinner together because they didn't realize what it was all about. Now that they spend significantly less time with us, Frodo seems to realize that the time we spend together is special and he enjoys it.

Rapunzel has also gotten very tired and cranky at school. She gets really exhausted by the weekend and often needs to spend much of it snuggled up with one of her grown-ups. Once Monday comes around, she wants to go back and she has never expressed displeasure or reticence to go after the first day, I think the crankiness is subconscious for her and she isn't always able to articulate that it's physical contact with her parents that she needs. I wonder how this trait will serve her when she becomes a grown-up herself and has hopefully had all of her needs met. I hope it will help her to be empathic and compassionate.

Buggy has absolutely loved her two schools. She screams in joy when she sees her teachers or her school bus (which she takes once a week) and then screams again when she sees mom or dad. She attends the two year old class in one preschool and her teacher reports that she is right on track cognitively with them. I watched her on the first day behind the observation glass and she was comfortable and played the whole time. The other class has her behind on her vision and fine motor, but she loves it and the teacher loves her. I think she spends most of the one day that she is there in various therapies.

Which leaves me for about an hour or so with the little, to whom I have not given a blogname, it's so weird to be in the home with out a brood all the time. No wonder other moms have cleaner homes. I've been able to keep the place 15 minutes from presentability for most of this time. I'm hoping once we have a system down pat that I can actually start doing some things I've been waiting to do (scrapbooking, beading or sewing anyone?). The babe is still taking about 3 naps and is starting to "let go" of the nursing nap, for at least one or two of those naps, so I'm reading less and doing more around the house. It's kind of nice. I'm even getting more time to type. It's perfect timing as my LLL work is going to become a little more time-consuming as I take on an area responsibility that could take me all over the state and I've been trying to get into for over one year.

We're nearing one whole year with a grown-up job and no more grad school. I still often feel like things are going so well in that department that I need to pinch myself. Who knew you could find a place where you could do something that made you feel good, and you could still make enough money to support your family without worrying about your job security.

So that's what we've been up to. It's been a full couple of months. Baby is starting to turn over a full 360. She looks just like the rest of us (who can be surprised with that). My mom was commenting that she looks a lot like I used to at that age, but she also looks tons like J and I've come to the conclusion that once you have as many children as we do, people stop trying to decide which parent she looks more like and instead with each child or the ever-funny "wow! she really belongs in your family doesn't she!" She's so smiley and has J's fake dimples on both sides. You know what I mean, right? J has one real dimple and one "fake" one, meaning, it has a kind of "fold" in the cheek, but it doesn't really look like a "hole" in the muscle. I don't know if that makes sense, but oh well...

We have a bunch of family and friends with babies coming and just shown up. Congrats to all of you! Hopefully you won't have to wait too long to hear from us.

Oh, BTW, if you also want to know what we're up to, come over to ourstory.com and look me up. It's an awesome website with which I'm having tons of fun. Come join me! It's under my "real name" instead of belcantomom. It's probably the only place on the web that is like that. I can keep privacy circles, though, so nobody has access to stuff I don't want them to.

Have a wonderful conference weekend!